Friday, August 9, 2013
Thursday, August 8, 2013
So what we trying to do.
Everyone is born with a pancreas that secretes insulin to help us regulate our blood sugar. I bodies recognize that we need a certain amount of blood sugar ( glucose -- another name for blood sugar) to run our brains and bodies so our pancreas only secretes the amount of insulin it needs to help us keep that balance so we have plenty of glucose to run our brains and bodies and the pancreas creates enough insulin ( just the perfect amount) to kick out the excess glucose.
NOW what Leo's body is doing is it is kicking out as much insulin as it dang well pleases even if it doesn't need it so the insulin is eating all of his glucose up so he doesn't have enough to run his body. So he's on a glucose drip to match the amount of insulin he is making so that he has enough to run his body and fight off the insulin. So he started out at 20% glucose drip at 17 ml per hour and now he's to a 15% glucose drip at 6.2 ml a hour and our end goal is NO GLUCOSE DRIP!!! So as you can see we're coming along. BUT that doesn't mean we're coming home soon because along the way he's gone down in the glucose and in the same day had to go right back up. This is an extremely gradual process that's why the date is indefinite. He might get all the way down to a 2 ml/hr and not be able to shake it and not be able to wean down. So then you ask what do we do from there. He's also is on a medicine called diazoxide that in all the literature says it works but in all the clinicals that Dr. Anshoots has seen it didn't work. SO please pray that Leo can be that small percentage that the medication works on so we don't have to do anything more extreme.
Well this actually runs in Alex's family but we don't know if it's genetics causing it. SO they sent out tests on monday for gene testing and it takes a week to two weeks to get the results back. They also may have to route down to removing part if not all of the pancreas. WE DO NOT WANT THAT so that's why we are taking our sweet time figure him out and let his body figure itself out.
SO please pray that his body can figure this out.
SO we are here in Idaho indefinitely. And Leo is at EIRMC indefinitely. Please pray for him. Please pray for Layla that she can understand and that this is going to make her strong and not effect her badly.
Thanks for all of the support. We are so grateful and love you all so much.
Monday, August 5, 2013
i keep forgetting stuff but this is probably important to record. Leo has had 3 beautiful blessings from his dad, his grandpa, and a few wonderful friends helping. I do feel like I want him to have another blessing. I believe that those priesthood blessings and prayers are what have been sustaining our family. Thank you all for your support!
explanation of glucose drip: He's at a high number the point is trying to wean him to 0 and have him sustain his own body. I read through the blog and realized that might've been confusing...
Monday, October 10, 2011
Features the highest-quality HD streaming available.
Pros: High quality picture, Reliability, Built in Wi-Fi, Easy to use, Compact
Cons: Hard time streaming live
Best Uses: Primary TV, Living room
Describe Yourself: Netflix fan
Great! I tried to watch the LDS General Conference on it, but it had a hard time streaming the live Conference... So that's been the only problem! THank you!!!!
Monday, September 5, 2011
Monday, August 1, 2011
When I was in late elementary school and all through middle school I was told how ugly I was.
"There is the Orchid Man!"
"She's so fat!"
"Her hair is so frizzy."
"She's so hairy!"
So mom didn't let me shave my legs until I was in late 5th grade after begging. She didn't let me use makeup or pluck my eye brows. She didn't teach me
My entire life I lived in a family that believed in beauty and money.
"No Orchid, don't wear your glasses."
" No Orchid don't leave your hair curly straighten it."
"No Orchid you must become a doctor to have lots of money."
Summer before eighth grade I spend 10 days in the hospital. Shortly after 9 grade I spend 8 days in the hospital. That december I move to Miami. 3 high schools later and I end up at my 4th in powder springs, ga
I moved to a new school my junior year of high school. I made friends with good people. I made friends with everyone. I lost the ugly names... I wasn't "Orchid Man" anymore. Then senior year, one of the most popular girls in our school befriended me. She was just my friend outside of school . She took me home after school. One day she invited me to dinner, I was amazed she wasn't embarrassed to be seen with me.
Is it weird hearing Orchid say strange things.... well every girl wants to be popular in high school, I was in the running for FRIENDLIEST though...
Anyways, I was introduced to the Gospel of Jesus Christ. What changed my life.
A lot of time I'm afraid of talking about my conversion because I don't want to be that "convert" that acts like she's better than all of those life longers etc. But I didn't realize what my conversion did. I have been so reminded of the the change of my life.
I could've been somewhere without God, I could've been broken, but through all the trials and tribulations I have been through I rose above it.
All those words that hurt me all my life: Heavenly father saved me.
This is not a post to make anyone feel bad for me, a post to tell them whatever they are going thorough, they can rise above it, like a skyscraper.